Family Dynamics – It is all Complicated

The time has come to write about this or I will not be able to move on.  So I will lay it all out here; all this baggage I’ve ruminating over the past few months.

It is a family thing, the past, the present, life and death… brought on by recent events involving my brothers.

I was the youngest of three, the only girl, with two full biological brothers. One brother 5 years older, William (who growing up was called Sonny) and the other Howard. 

Our mother left our father when I was just a baby and we grew up with our mother and step-father, Melvin. My oldest brother was 8 when Melvin came into our lives; I was only 3. 

Melvin was a good ol’ boy from east Texas. I wrote about him earlier and the other two step-fathers in my life. 

My life under Melvin was a little more sheltered as a girl but I did endure the pain of “whippings” as a child. Spanking is too kind of a word. These were harsh lashes with a leather belt that left strap marks and bruises across my legs and body. It was part of old southern child rearing method but it went beyond not sparing the rod.

My brothers on the other hand, encountered undue abuse from Melvin.  Under the rule of an authoritarian dominant man they suffered emotional and physical punishment well into their teens. One small step out of line was met with disproportionate severe corporal punishment. 

Maybe some sort of male rivalry was involved as well. Melvin was only 10 years older than Sonny.  I remember once when he was a senior in high school, Melvin came after him with a whip and swung at him with a chain.

I addition, before Melvin, Sonny witnessed alcoholic rages against our mother by our biological father. 

As soon as he graduated he left home and never returned. 

Howard, was just 16 months older than me. He was very intelligent.  He used to read the encyclopedia and memorize pages in the dictionary. He also played the trumpet and was a big fan of Herb Alpert and the Tijuana Brass. 

He was still living home when Melvin left our mother for another woman. Howard and I both had to make our way through the step-father who came next. 

In addition to all this physical abuse, over the years I harbored another family secret. I had endured sexual abuse by my brothers from a young age.

The stepfather that came next was far more interested in me than was proper. I could see the signs of coming abuse. I wanted out any way I could.

Thankfully, I met the son of a local restaurant owner, four years my senior. You could say, we fell in “love” or we both were both looking to escape. Either way we did escape and never looked back. 

We married and I left home at 14.

The reality of childhood for all of us in our home, behind closed doors, was that it was fraught with abuse, insecurity and trauma. There were good times but they were overshadowed by the fear that at any moment things could flip.

Within 2 years, 1968-70, my brothers and I had all move out of the abusive world and went our separate ways. 

We had only casual contact over the next 20 years. All of us were part of military families and lived miles apart. 

As I grew older effects from childhood sexual abuse became a stumbling block for me.   I had trust issues. I also had faith issues. I was looking for love in all the wrong places, as the country song goes.

In the wake of the major child abuse stories of the late 80’s, I was forced to come to terms with it. Thirty years old and I had never told a soul about the abuse.

I confronted both of my brothers with unsatisfactory results. It was written off as child’s play or something “I wanted,” by Howard. Sonny did not want to acknowledge it or discuss it. No resolution was coming. 

After the response I received from Sonny (the worst offender) we literally had very little to no contact for years. I did not see either brother again until 1999 at my grandfather’s funeral.  I never saw Howard again after that.

Both of my brothers were alcoholics.  Sonny quit drinking some 20 years ago but Howard, whose drinking started in his teens, was a life long alcoholic. He also had mental issues. 

Although I never saw Howard again after 1999, he would call me drunk in the middle of the night. He would tell me that the Italian mafia was after him and he was in the CIA. He would call my office and speak to whoever answered the phone and tell them all these same crazy stories. The final straw was when he called my house and spoke to my youngest son, Josh. 

He told Josh he had gun and was going harm himself. That time and once before, I called the local police to do a welfare check on him.  

After this, I blocked him from all my numbers… work, home, cell phones. My mother told me that he didn’t know why I wouldn’t speak to him anymore.  I told her, “Yes he does.”

I saw Sonny again in 2012. He was living in Las Vegas and I flew down to see my Auntie who was in a tournament there. She arranged to have dinner with him but didn’t tell him I was there. I was the surprise. It was a cordial meeting, nothing more.  

Over the past 15 years he had many health issues. As our mother aged and dealt with dementia, I became her financial and health decision-maker. He would call and discuss issues he was seeing in mother. He would extend some encouragement and offer to help in any way he could but I discovered he couldn’t do much. 

I blogged about what I was going through dealing with my mother’s dementia and lamented that my brothers were no help, but thankfully they were no hindrance either. 

When my mother died neither of them came to her funeral. Sonny sent flowers and had called to say goodbye before she passed. Over the years he had been very faithful and loving to Mother. Although he did not visit for many years, he called her several times a week. 

Howard and mother had a hard relationship. He could call sober and all was well but when he called drunk, he was abusive. The last few years of her life she stopped taking his calls.  

Just days before she passed, I asked the social worker at the nursing home if she would call and tell him she was dying. She did and he agreed to speak to mother. She was no longer conscious but for all the things Howard did that were horrible, that day he stepped up to the plate. He said what needed to be said so she could pass in peace.  

I did not speak to him that day or anytime since she passed. 

All of this background to get to what I came to say today so that I can close the door on the past. Close the door because:

Both my brothers died this year. Four months apart. 

Sonny died July 22. Complications from cancer surgery years ago and cirrhosis of the liver. Even though he quit drinking 20 years ago, the damage was done. 

Howard died on November 20 just before Thanksgiving. His neighbors had found him unconscious in his house.

I was contacted because I was thought to be the only surviving blood relative. I told the hospital he had a daughter but she did not know him growing up. I contacted my niece and told her I would act as decision maker if she wanted. She thought about it and called me back and said she felt it was her responsibility. 

He was in the hospital for a week and never regained consciousness. We found out that he also suffered from cirrhosis of the liver, as well as he had cancer in his lungs and brain. 

In the end I am thankful my niece made the decisions.   I would have found it difficult. 

They are all gone now. My father, mother, all the step-fathers and my brothers. 

It is all so complicated and confusing in my mind. I was sad, but never shed a tear for my brothers although it seemed I should have. 

Being the only one left from your childhood family is very sobering. I turned 70 just a few months ago.  I have struggled the past few weeks with the reality of my immortality.   I hope to live past the 71 and 74 years my brothers had. 

Mostly, I pray that I can move beyond all the memories of the past that have kept my mind captive for so long. They are all gone, and in many ways, I am free.  

Revisiting – No Fight Left ~ Only Love

In this month of love I am reblogging this post about one of the last sweet visits I had with my mom.

It was a January visit and I came down because she had a brief hospital stay. When she came back to the nursing facility, she had to be an isolation because Covid protocols were still being practiced.

I am so thankful I had these few days with her, even though visits were limited to one hour because of Covid.

After this visit, I came home and did not return until Mother’s Day in May. When I saw her, she had declined dramatically.

We had no conversations, and she was in so much pain and agony. It was hard to see her suffer.

This one day in January was a beautiful final chapter of the era of dementia. It was a healing day for me and it helped me walk with my mother through her final days.

https://emyloomwordswovenwithinmyheart.com/2021/01/10/no-fight-left-only-love/

Sometimes Life Gets You Down

I am down tonight, it has been building for weeks but tonight I feel it intensely. It is a combination of many things. 

The first week in November, the 17 year old son of a close friend died in a drowning accident. 

He was a bright, kind, and joyful child.  In his obituary his parents wrote;

“He will be remembered for his unmitigated joyfulness, his natural curiosity, and his wholehearted enthusiasm. He lived fully. In his seventeen years of life, he traveled extensively and visited many places including Belize, the Galapagos Islands, Fiji, New Zealand, and Samoa. He enjoyed exploring and experiencing the world… He loved camping and felt at home sleeping under the stars. He could be found cooking homemade meals for his family, teaching himself to play the piano, or gaming with friends. He did not squander his life. He stepped into it with a big smile and his wonderful curly hair, awake and wholehearted.”

No doubt many have heard, “No parent should ever have to bury their child.” It is true.

Secondly, my son who has been battling IBD and autoimmune pancreatitis for 14 years has been in the hospital for a month. He came home today, but he is not well. 

He was equally a charming child. He had a magical childhood as well. He traveled the world with us. He raised chickens (they were his pets), then he became interested in aquaculture. He formed a website for the reef community at 14, he started a computer cloud company at 20. He had a bright and promising future when IBD reared its ugly head. At 22, his colon perforated while he was in the hospital. He was bleeding internally. After 3 surgeries and 8 weeks in hospital he came home. A year later he nearly bled to death after a scope procedure and biopsy.  Then year after year it seems the problems just piled on. 

Today he is on a lot of medication, he’s in a lot of pain, and it seems the medical community has given up on helping him. It’s incredibly sad when you have to fight a disease and you have to fight the medical community too. 

I have prayed so many prayers for my son. The other day I pleaded with God, I asked, what is the answer? Is there anybody that can help him? So far the answers have not come. 

Added to this, I got a call this morning that my cousin died. I just saw her in September. She was five years older than me in the last 15 or so years we reconnected and became closer.  She was beautiful, she was intelligent, loving and kind.  

She was a RN and with continuing education, got her masters degree. She worked for years at the VA hospital in Albuquerque as a counselor.

Sadly, several years ago, she was diagnosed with Alzheimer’s and declined very quickly. 

When I saw her in September, she was unable to carry on a conversation. When I arrived, she looked up at me and smiled. I said to her, “Hi Debbie, it’s your cousin, Trish”  She looks straight at me and replied, “I know.”  That was the most comprehendible conversation we had that day. 

I asked her to take a picture before I left. I held up the phone and smiled to take a selfie.  She leaned her head over to touch mine and shut her eyes.

I am forever grateful for the visit that day. When I got home in Washington, I reflected on my visit with her. I felt she would grieve if she understood, she would not want to live that way.  I told my husband I never want to live that way.  Just existing with all dignity and autonomy lost. 

Finally, it is winter. It is dark, dreary and cold outside. I feel dark, dreary and cold inside.  

A slowly brewing state of grief, downheartedness, and sorrow in my soul. 

Praying this season in my soul passes quickly. When winter is over I pray I will see and feel the new hope of spring. 

Deborah Ruth – Rest in Peace

Love Lifted Me

I once wrote about whether serendipitous events were by coincidence or divine appointment and whether God can use any means to send specific messages. I believe an experience that touched my heart today is more than a coincidence and one of those times that God’s message was for me.

It started this morning when I posted this picture because today is six months since my mother passed. I woke up thinking of her and she has been on my heart all day and this evening.

In 2012, Chris and I took my mom to Israel with us; to say it was a challenge was an understatement. During that trip I realized how badly her dementia had become. Chris was a saint, because some days I lost my patience.

During the entire journey my mother sat behind me in the car and she hummed or sang the hymn “Love Lifted Me”. Over, and over again, for 10 days. I was convinced it was a power struggle and she was doing it just to spite me. Several times I tried to change the tune. I tried playing music on my iPhone (even gospel music which she loved) but “Love Lifted Me” continued. At some point and I don’t think I was very nice about it, I asked her to please stop.

This November I have been making a daily post about thankfulness and things in my life I am thankful for. I often start with a quote from wise people that have passed their wisdom down to us.

This day’s quote was, by Samuel Butler: “Let us be grateful to the mirror for revealing to us our appearance only. ”

Oh how true is that! I wrote about my heart that could be ugly and less than what God wants it to be. Reflecting back now I know, sadly some of days on that trip my heart was not where God wanted it to be.

So tonight I posted “Reflection of My Heart,”to my blog and logged onto Facebook to share it there. In my news feed were ‘suggested’ videos as usual and the first one up was Randy Travis singing “Love Lifted Me.”

Coincidence, I think not. I do not even own a Randy Travis CD, album or song. I picked a quote to write my “thankful” story without any particular situation in mind and my mother was on my heart because of the time since her passing. Three things came together today and combined they sent a message that struck deep in my soul.

Yes, I played the video of “Love Lifted Me” all the way through and my heart could hear my mom’s voice humming along in the backseat as we traveled through the Holy Land.

Here is the link. Randy Travis. Love Lifted Me

https://youtu.be/5KX-TnmSNqQ

If it were Possible Not to Forget

What do you do when your mother forgets you?

Christmas 2016, I surprised my mother with a visit. As I stood at her door she greeted me with a simple “hello” and told me to come inside before her cat got out. Once inside, she looked at me and said, “Do I know you?” I replied…”I don’t know, do you know me?” Then she realized who I was and the tears began to flow. That was three years ago and I chalked it up to the fact that she had recently fallen, hence the reason for my surprise visit.

After this visit there were several more and one that included visiting her doctor with her. He had been telling my step-sister (who will will call my sister here on out because she is closer to me than biological siblings I have and I love her with every ounce of my being) and me that the time was coming she should not be living on her own. She was fighting for her autonomy with every bit of fight she had left. She avoided going out, she told white lies, she pleaded with her friend to not tell us about her memory lapses or drives in the night thinking it was daytime…she knew she was losing a battle with her failing memories and ability to know what was going on around her, to manage her finances and take her medications.

My sister and I visited several assisted living facilities and nursing facilities. We encouraged (begged and pleaded) with Mother to come with us but she would have none of it. She wanted to stay in her house until she died.

Fast forward 18 months, on a July morning she walked outside her house, tripped and fell. As a result of the fall she had fractured her pelvis and was placed in a nursing facility to recuperate. When it came time to make a decision to go home she was insistent that she was going home. I was torn because after her few months in the nursing home she seemed more cognitive of what was going on and seemed to be moving better as well. All this was a result of better diet, attention and care, consistent medications, lack of worries or stress from being in survival mode. Although it was difficult, with her doctors help, we did tell her she would no longer be able to live on her own.

note I live 2000 miles away and although I don’t she her every week, over the past year and a half I have been to see her eight times. The last several times, when I walk in with my sister she looks a me for a moment but pretty quickly realizes who I am. Last week, I traveled down and with my sister went to tell her that her step son had passed away. She had claimed Albert as her own when he was ten years old, the youngest of all of us he past away suddenly and unexpectedly at 59. When we walked in she said to my sister who sees her every other week, “Who is that woman with you?” My sister replies you don’t know who this is? It’s your daughter. Sister quickly reassures me that the reason she did recognize me was due to the fact my hair was up in a bun.  She says that Mother sometimes doesn’t recognize her at first if her hair is in a ponytail.

We held Mother’s hand and told her the sad news about Albert and his passing.  All in all she took it well,  but repeated the same questions over and over about how, where, funeral etc. We took her to dinner and when we left she was a little weepy but accepting. The next day we came back and took her to lunch with her friend. We had a good lunch, then went back to her room and put up valentine decorations and gave her some new sweaters and blouses we had gotten her. She was in good spirits although she still keep repeating the same questions, not fully grasping or remembering the answers. When we left she walked us to the door and we said our goodbyes.

Today, one week later, I called her to see how she was doing. It was my second call this week. The first thing she said to me today was, “Did you hear Albert died?’ I said, “Yes I heard. Remember Paulette and I came to tell you last week?” No, she didn’t remember me coming, she remembers my sister but not me. She asks again about Albert’s funeral, and then switches the subject  tells me she got new shoes but she doesn’t know where she got them or what they look like. Then she asks me, “When are you coming to see me?”

It is a little stab in the heart, she doesn’t know me but she does; she wants me to visit but she doesn’t remember. I dread the day she doesn’t know me when I come or doesn’t ask when I am coming back. Sadly,  I know one day my mother will forget me.

 

Patsy Cats

File this under, “Crazy things you do.”

I am up at 2AM perusing Ebay for kitty cat pins.   My mom, Patsy, is/was a Texas cat lady extraordinaire. She always had a cat on her lap, in addition she had shelves full of figurines, teapots, cookie jars, bookends and every sort of ceramic cat thing ever made. Mostly all gifts from her friends, kids and grandkids that knew she would “just love them.”

Last year I shared about my mom’s dementia and fall which lead to her being unable to live on her own. I shared about the difficulties of clearing her house. Trying to treat her treasures with respect and knowing I could not keep everything. I took a few cats figurines, my sister took a few, I gave some “Patsy Cats” to her friends, I brought some back to Washington and gave to my friends who had met my mom.  “Patsy Cats” were re-homed around the country yet many remained that in the end we donated to charity. It was heartbreaking to dismantle my mother’s possessions and treasures but it had to be done.

When the doctor told her she would not be able to live on her own, my sister and I went out to her house and picked up a few treasures to decorate her room. A book shelf, pictures and several cats to put on the shelves. In addition to all the cats mentioned above, my mom also had a large collection of kitty cat brooches. She had them on her sweaters and blouses and never left the house without being adorned with a golden cat pin. When we were at her house, I found a small metal box, when I opened it I found full of all her brooches.  There were at least 20 in there plus all the ones we found still pinned on her sweaters she probably had 40 or more. I took them to her at the home, at least she could have all of these.

Now comes the sad and tragic bit. My mom has been in the nursing home a little over year now and all the pins are gone.  A few months ago my sister was going to put one on her sweater as she was taking her to lunch and she couldn’t find the box. She told the staff that her box was missing and they did a search. They found the it in a ladies room next door but only one pin inside. You cannot get angry because like my mom, this lady doesn’t comprehend what is going on.  Matter of fact, she insisted that the box was hers.  The pins? They could not be found. Are they hidden around the care facility somewhere? Did she give them away? We do not know.

8BA74499-CFE9-4BFD-A796-E8064664AAF5So here I am at 2AM searching Ebay for kitty cat brooches. I thought these things weren’t so much valuable as they were treasures, but apparently not. They are anywhere from 5-30 dollars or more. So I bought five, a couple were similar to ones she owned.  I am going to bring them to her when I go down to Texas next month. Whether she realizes she has lost so many is hard to say, but when she sees these she will “just love them!”

The Book of Mother: My Story

 Last summer looking for some guidance, advise, help and yes, probably sympathy I joined a group called Caring for Elderly Parents.  I was trying to make decisions regarding my mother’s care.  I found all of the above there and after a few weeks I realized I was only one of many who were facing these challenging decisions. 

I have found there are no “one solution fits all all” answers. Also, rules vary state-to-state but I feel I have moved past the crucial decisions and accepted I did the best I could for my mother. I did it without the help of my biological siblings but with overwhelming love and support from my step-brother and sister who have shown their love and devotion to my mother in tangible ways.   

Some of the things I learned and my thoughts are listed below in the hopes some points may help others  on their  journey. 

  1. Family. Even though you have siblings, you may be the only one willing to make decisions. I was lucky because even though mine did not participate, they were quite happy to relinquish any say in decisions I made.  I did not even waste my breath telling them how useless they were. They know it. They can live with their decisions, I can live with mine. 
  2. Guilt!  It is awful, over-powering but do not let it defeat you.  My mother had fallen and broken her hip but for the 18 months prior to that her doctor had told me because of her dementia, the time was coming that she should not live alone.   I live 2200 miles away and had been making 3-4 trips a year to try and help her stay independent.   When the time came after recovering from the fall, she was walking and discussions were started about whether she could go home. At that point she ramped up the pressure.  “I want to go home! I want to go home! I don’t care if I go home and drop dead. I’m going home”.   It was a tortuous couple of weeks.  I, myself, vacillated day to day about the right decision. Accepting the fact your parent is aging and can no longer care for themselves is hard to believe and navigating that role reversal takes an emotional toll.  Don’t let anyone tell you what “you should” be doing. If only others could see the battle going on within your heart they would keep their opinions to themselves.  That also goes to companies that are trying to sell you something. There is one commercial that says…”because we promised Dad we’d keep mom at home.”  That commercial makes my blood boil. How dare they take advantage of the guilt burden we are already carrying.  Trust yourself, grieve, pray, rest when you can and don’t let anyone rush you. When it is right you will know. 
  3. Debts.  One thing you may find is that your parents were good at hiding problems from you, a problem many experience.  Before my mother fell I had taken over paying her bills because she had lost the ability to track and manage funds as a result checks were bouncing in our joint account. Only after she fell, I found my mother had several credit cards with high balances that she was behind in the payments and she had never told me about. I called and tried to explain the situation.  I told them I could make very minimum payments for her which I did out of her funds.  When it was decided she would not go home, I called and told them she could no longer make these payments as the state would be taking all of her funds for her care. They tried to pressure me to pay her debt. Don’t do it. Any funds you have you may need to buy personal supplies for your parent. My mom is left with only $60 a month to buy toiletries, medical supplies, or snacks. Use your money to care for your parent. The credit card company agreed to take the risk of extending credit, I did not.   If they want to sue an 85 year old for a debt, although large for her it is small potatoes for them, well let them try.  I learned that in TX where my mother lives there are protections for Social Security funds. So sorry Capital One but we are done.  
  4. Trust. Trust but verify. After my mother fell the lady handling her Medicaid application at the nursing facility kept assuring me they had filed an application. After months of checking in with her, I called one day and found she had been dismissed… no application had ever been filed. I finally processed the application myself. It took many calls to the state and oftentimes just calling back and getting another person is worth the trouble.  If you find someone that actually knows what they are talking about,  see if you can get their direct line!  
  5. Document. Trying to keep all the details of this period taxed my sixty-something brain.  I got a spiral notebook and started documenting everything. Calls to the nursing facility, calls to her utilities and other bills, passwords for her accounts on state agencies and even calls to my mother. Often day-to-day it was interesting to see what she remembered one day that was gone the next. It has been a valuable tool and also serves as a journal to remind you how far you have come and reassure you that you will make through to tomorrow, to next week or month.  I call my book, “The Book of Mother. “
  6. Forgive. Finally but not least, forgive yourself, forgive your parent and try to forgive others. Through my own journey, I went through a multitude of emotions and feelings about my mother.  Love, sadness, anger, frustration and sorrow.   The hardest to deal with was anger… I was angry that my mother hid things from me, angry because I felt she was  being manipulative and then I was angry at myself for feeling angry.   It happens.  I have someone I can voice these feelings of anger to without feeling judged and that helps, because I think more than anything it was an anger that I didn’t want to accept the fact that my mother was getting old.  Many of these things, although she may have done them in the past,  she was not doing them purposefully now.  Now I try to direct my anger at the disease that takes away your mind and independence.  Forgive others… that is difficult. I won’t go into depth here but just know, the evil in man’s heart knows no bounds and it shocks me to know what people will do and how they will take advantage of the elderly.  Thankfully there are fewer of these people and more of the loving and giving types. 

I am running low on thoughts for now. It has been 5 months since my mother’s doctor told her she could not go back to her home of 45 years.  I am now in the process of dismantling my mother’s life and possessions even though she is still here, that has it’s own challenges. My mother told me the other day that she didn’t want to go home anymore. ❤️ I think the past few years she was battling to survive physically and mentally, but now is cared for and loved.  She feels safe and can rest for the rest of her retirement years.

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