Family Dynamics – It is all Complicated

The time has come to write about this or I will not be able to move on.  So I will lay it all out here; all this baggage I’ve ruminating over the past few months.

It is a family thing, the past, the present, life and death… brought on by recent events involving my brothers.

I was the youngest of three, the only girl, with two full biological brothers. One brother 5 years older, William (who growing up was called Sonny) and the other Howard. 

Our mother left our father when I was just a baby and we grew up with our mother and step-father, Melvin. My oldest brother was 8 when Melvin came into our lives; I was only 3. 

Melvin was a good ol’ boy from east Texas. I wrote about him earlier and the other two step-fathers in my life. 

My life under Melvin was a little more sheltered as a girl but I did endure the pain of “whippings” as a child. Spanking is too kind of a word. These were harsh lashes with a leather belt that left strap marks and bruises across my legs and body. It was part of old southern child rearing method but it went beyond not sparing the rod.

My brothers on the other hand, encountered undue abuse from Melvin.  Under the rule of an authoritarian dominant man they suffered emotional and physical punishment well into their teens. One small step out of line was met with disproportionate severe corporal punishment. 

Maybe some sort of male rivalry was involved as well. Melvin was only 10 years older than Sonny.  I remember once when he was a senior in high school, Melvin came after him with a whip and swung at him with a chain.

I addition, before Melvin, Sonny witnessed alcoholic rages against our mother by our biological father. 

As soon as he graduated he left home and never returned. 

Howard, was just 16 months older than me. He was very intelligent.  He used to read the encyclopedia and memorize pages in the dictionary. He also played the trumpet and was a big fan of Herb Alpert and the Tijuana Brass. 

He was still living home when Melvin left our mother for another woman. Howard and I both had to make our way through the step-father who came next. 

In addition to all this physical abuse, over the years I harbored another family secret. I had endured sexual abuse by my brothers from a young age.

The stepfather that came next was far more interested in me than was proper. I could see the signs of coming abuse. I wanted out any way I could.

Thankfully, I met the son of a local restaurant owner, four years my senior. You could say, we fell in “love” or we both were both looking to escape. Either way we did escape and never looked back. 

We married and I left home at 14.

The reality of childhood for all of us in our home, behind closed doors, was that it was fraught with abuse, insecurity and trauma. There were good times but they were overshadowed by the fear that at any moment things could flip.

Within 2 years, 1968-70, my brothers and I had all move out of the abusive world and went our separate ways. 

We had only casual contact over the next 20 years. All of us were part of military families and lived miles apart. 

As I grew older effects from childhood sexual abuse became a stumbling block for me.   I had trust issues. I also had faith issues. I was looking for love in all the wrong places, as the country song goes.

In the wake of the major child abuse stories of the late 80’s, I was forced to come to terms with it. Thirty years old and I had never told a soul about the abuse.

I confronted both of my brothers with unsatisfactory results. It was written off as child’s play or something “I wanted,” by Howard. Sonny did not want to acknowledge it or discuss it. No resolution was coming. 

After the response I received from Sonny (the worst offender) we literally had very little to no contact for years. I did not see either brother again until 1999 at my grandfather’s funeral.  I never saw Howard again after that.

Both of my brothers were alcoholics.  Sonny quit drinking some 20 years ago but Howard, whose drinking started in his teens, was a life long alcoholic. He also had mental issues. 

Although I never saw Howard again after 1999, he would call me drunk in the middle of the night. He would tell me that the Italian mafia was after him and he was in the CIA. He would call my office and speak to whoever answered the phone and tell them all these same crazy stories. The final straw was when he called my house and spoke to my youngest son, Josh. 

He told Josh he had gun and was going harm himself. That time and once before, I called the local police to do a welfare check on him.  

After this, I blocked him from all my numbers… work, home, cell phones. My mother told me that he didn’t know why I wouldn’t speak to him anymore.  I told her, “Yes he does.”

I saw Sonny again in 2012. He was living in Las Vegas and I flew down to see my Auntie who was in a tournament there. She arranged to have dinner with him but didn’t tell him I was there. I was the surprise. It was a cordial meeting, nothing more.  

Over the past 15 years he had many health issues. As our mother aged and dealt with dementia, I became her financial and health decision-maker. He would call and discuss issues he was seeing in mother. He would extend some encouragement and offer to help in any way he could but I discovered he couldn’t do much. 

I blogged about what I was going through dealing with my mother’s dementia and lamented that my brothers were no help, but thankfully they were no hindrance either. 

When my mother died neither of them came to her funeral. Sonny sent flowers and had called to say goodbye before she passed. Over the years he had been very faithful and loving to Mother. Although he did not visit for many years, he called her several times a week. 

Howard and mother had a hard relationship. He could call sober and all was well but when he called drunk, he was abusive. The last few years of her life she stopped taking his calls.  

Just days before she passed, I asked the social worker at the nursing home if she would call and tell him she was dying. She did and he agreed to speak to mother. She was no longer conscious but for all the things Howard did that were horrible, that day he stepped up to the plate. He said what needed to be said so she could pass in peace.  

I did not speak to him that day or anytime since she passed. 

All of this background to get to what I came to say today so that I can close the door on the past. Close the door because:

Both my brothers died this year. Four months apart. 

Sonny died July 22. Complications from cancer surgery years ago and cirrhosis of the liver. Even though he quit drinking 20 years ago, the damage was done. 

Howard died on November 20 just before Thanksgiving. His neighbors had found him unconscious in his house.

I was contacted because I was thought to be the only surviving blood relative. I told the hospital he had a daughter but she did not know him growing up. I contacted my niece and told her I would act as decision maker if she wanted. She thought about it and called me back and said she felt it was her responsibility. 

He was in the hospital for a week and never regained consciousness. We found out that he also suffered from cirrhosis of the liver, as well as he had cancer in his lungs and brain. 

In the end I am thankful my niece made the decisions.   I would have found it difficult. 

They are all gone now. My father, mother, all the step-fathers and my brothers. 

It is all so complicated and confusing in my mind. I was sad, but never shed a tear for my brothers although it seemed I should have. 

Being the only one left from your childhood family is very sobering. I turned 70 just a few months ago.  I have struggled the past few weeks with the reality of my immortality.   I hope to live past the 71 and 74 years my brothers had. 

Mostly, I pray that I can move beyond all the memories of the past that have kept my mind captive for so long. They are all gone, and in many ways, I am free.  

Genetically Blessed

Thankful today for good health.

I reached my 70th birthday just a few months ago and except for a few little blips that were quickly resolved, I am in pretty good health.

I have never been a devoted exercise fitness person. About 20 years I joined the local “Curves” fitness studio when they were a fad. I had a Nordic-trac that I used for a few years and I still have Jane Fonda’s workout videos. They got a few years use but I never got anything close to Jane’s stealth body. I work in my yard, climb lots of stairs at home and at work, but nothing as part of a routine.

I have always been a little on the plump side or as Mrs Vera once told be many years ago, “You’re a healthy girl”. Healthy, as one with a rubenesque figure but it wasn’t junk food that got me there. Never have been a junk food junkie, but I do have a healthy appetite. I eat a lot of vegetables, chicken, fish, and fruits. I have always loved bread and butter. Although I have cut back in recent years, I have to say butter makes everything better.

I know many people my age and younger that are struggling with health issues. I still have all my joints… knees, hip, and shoulders . They sometimes ache if I overdo, but they are still working pretty well. I am grateful that I still able get up every morning, go to work and stay engaged. This is a blessing I don’t take for granted.

I have grandparents on both sides of my family that lived well into their nineties. So like Sydney Sweeney, I must have good genes. Wink – wink

Sometimes Life Gets You Down

I am down tonight, it has been building for weeks but tonight I feel it intensely. It is a combination of many things. 

The first week in November, the 17 year old son of a close friend died in a drowning accident. 

He was a bright, kind, and joyful child.  In his obituary his parents wrote;

“He will be remembered for his unmitigated joyfulness, his natural curiosity, and his wholehearted enthusiasm. He lived fully. In his seventeen years of life, he traveled extensively and visited many places including Belize, the Galapagos Islands, Fiji, New Zealand, and Samoa. He enjoyed exploring and experiencing the world… He loved camping and felt at home sleeping under the stars. He could be found cooking homemade meals for his family, teaching himself to play the piano, or gaming with friends. He did not squander his life. He stepped into it with a big smile and his wonderful curly hair, awake and wholehearted.”

No doubt many have heard, “No parent should ever have to bury their child.” It is true.

Secondly, my son who has been battling IBD and autoimmune pancreatitis for 14 years has been in the hospital for a month. He came home today, but he is not well. 

He was equally a charming child. He had a magical childhood as well. He traveled the world with us. He raised chickens (they were his pets), then he became interested in aquaculture. He formed a website for the reef community at 14, he started a computer cloud company at 20. He had a bright and promising future when IBD reared its ugly head. At 22, his colon perforated while he was in the hospital. He was bleeding internally. After 3 surgeries and 8 weeks in hospital he came home. A year later he nearly bled to death after a scope procedure and biopsy.  Then year after year it seems the problems just piled on. 

Today he is on a lot of medication, he’s in a lot of pain, and it seems the medical community has given up on helping him. It’s incredibly sad when you have to fight a disease and you have to fight the medical community too. 

I have prayed so many prayers for my son. The other day I pleaded with God, I asked, what is the answer? Is there anybody that can help him? So far the answers have not come. 

Added to this, I got a call this morning that my cousin died. I just saw her in September. She was five years older than me in the last 15 or so years we reconnected and became closer.  She was beautiful, she was intelligent, loving and kind.  

She was a RN and with continuing education, got her masters degree. She worked for years at the VA hospital in Albuquerque as a counselor.

Sadly, several years ago, she was diagnosed with Alzheimer’s and declined very quickly. 

When I saw her in September, she was unable to carry on a conversation. When I arrived, she looked up at me and smiled. I said to her, “Hi Debbie, it’s your cousin, Trish”  She looks straight at me and replied, “I know.”  That was the most comprehendible conversation we had that day. 

I asked her to take a picture before I left. I held up the phone and smiled to take a selfie.  She leaned her head over to touch mine and shut her eyes.

I am forever grateful for the visit that day. When I got home in Washington, I reflected on my visit with her. I felt she would grieve if she understood, she would not want to live that way.  I told my husband I never want to live that way.  Just existing with all dignity and autonomy lost. 

Finally, it is winter. It is dark, dreary and cold outside. I feel dark, dreary and cold inside.  

A slowly brewing state of grief, downheartedness, and sorrow in my soul. 

Praying this season in my soul passes quickly. When winter is over I pray I will see and feel the new hope of spring. 

Deborah Ruth – Rest in Peace

A Magnificent Vessel

My womb
A Beautiful form
Like a Greek amphora vessel
With her thin graceful arms
She reaches out to hold
Delicate capsules
Embracing millions of treasures

Precious pearls
Released one by one
Month by month
Year after year
Nearly 40
Each pearl holding
The possibility of new life

This womb
Like the cycles of the moon
Prepared to receive a life
And then time and time again
In disappointment
She shed away the nourishing nest
Only to revive it again

She became the cradle
That caressed the tiny bodies
Of my three sons
She was the warm capsule
Where they were formed
From a single cell
Unseen by the world

My womb was a life giver
She is the essence
Of my feminine
She distinguishes me
As a woman
Present at my birth
This vessel that produced life

She came to life in my youth
And faded away in my old age
We endured the change with grace
Though there were days
That I cursed her
I was in awe of her ability
The miracles she brought

Today she became
My adversary
Within her walls
Grows not life but
An enemy
One that would try
To destroy me

Now I must release
This beautiful friend
She has given me
So much
Soon
I will say goodbye
I will grieve for her

They say she’s old
She no longer fulfills
A purpose
Even if that is so
I cannot toss her aside
As nothing more than tissue
Medical waste

She is more
She has been
The mystery within me
Magical
Wondrous
A masterpiece of God’s creation
Divine by Design

My heart
Is full of sorrow
I don’t want her to leave
But it is time
I am forever grateful
For all the gifts
From this Magnificent Vessel

2024 Trish B ©

Facing Inflammatory Bowel Disease: My Son’s 11-Year Battle

The post below from 11 years ago came up today on my Facebook page. It serves to remind me of a most desperate time in our family’s lives when our youngest son was facing serious health issues caused by Inflammatory Bowel Disease. This was only the first of life threatening events he would face over the next 11 years. Almost one year later to the date he nearly bled to death after a procedure where an arterial vein was accidentally clipped.

My heart begins to beat faster as I read my thoughts from 2013 and I relive the horror of those days. How could someone so young, become so ill, so quickly? It is IBD, and the myriad of other complications and chronic health conditions that sometimes accompany it, and tragically IBD has no cure.

For my son, it is accompanied by auto-immune pancreatitis, which has led to diabetes; the steroids that he has been given over the years to control inflammation have led to bone deterioration; the five different immune suppressing drugs he has worked his way through can all have horrible side effects including cancer. Three of these drugs proved ineffective, one he had an extreme allergic reaction to and we are praying the current one will show some effectiveness.

Eleven years, and sometimes I still think that “from this side it looks like nothing is happening”… He has been hospitalized annually for months at time, with bowel obstructions, bleeding, inflammation, pancreatitis, and sepsis. I have worried, fretted, prayed and pleaded with God. Some days I think he has closed his ears to my prayers.

I think those things, but I don’t believe they are true. I remember examples in the bible of men, men like David, Job and Paul, all men whom God loved and men who honored and loved God; yet they still suffered. Even, after all these years, I still believe God is in control and he has a plan for my son’s life.

May 19 was World IBD Day. It is a day set aside to bring awareness about IBD and to support the 10 million people worldwide that live with this disease. I will continue to pray. I pray for a cure. A cure so no one has to suffer any longer.

Why Me Lord?

He’s in the hospital again. Swedish hospital in Seattle. I was going to see him last night, but it was so dark and pouring rain that I struggled about whether I should go or not. In the end I decided against it.

This morning I heard on the news that there had been a terrible accident on the interstate westbound to Seattle. After the accident one of the drivers tried to cross the eastbound lanes of I-90 and was hit and killed. It seems I was wise to follow my instinct and better judgment, or could it have been God leading me to make a wise choice.

Tonight, the rain had eased up, so I went to Seattle. On the way home at 8PM the traffic was still heavy, it was dark and had started to rain heavily. I turned on some music to relieve some stress. Two songs came on my Apple Music one after the other, and I repeated them all the way home. The first was this one by Kris Kristofferson ~ “Why me Lord?”

This video tells the moving back story of Kristofferson‘s song.

He wrote the song after a spiritual experience he had in 1972. He attended a church service and during the invitation he was overpowered with the love and forgiveness from Yeshua (Jesus). The song imparts his feelings of unworthiness of such love from God.

On a side note, hearing this song brought back memories of my youngest son when he was about 5 years old. Once when the song was playing, he wondered why KK was saying “Why Me Lord?” He thought maybe he was asking God why his voice was so deep. ❤️

The second was “Fall On Me” by Joel Chernoff. It is duet with Sharon Wilber. It is a love song and a plea to the Lord to touch one’s life and be filled with the spirit of God. It reminded me that God is faithful and I only need ask for more of him.

My spirit has been struggling of late like many others. I look around and see all the anger, all the immorality, all the suffering and mostly all the hate and it is disheartening. Added to that is the anxiety that comes when Josh is in the hospital. I wonder will he ever know a cure, or will he suffer endlessly? I have a deep nagging fear that he is slowly dying because if the disease and it’s comorbidities don’t take his life, the strong medications he takes to suppress his immune system will. Many of these drugs come with warning that than can cause cancer. He is currently on his fifth one after having four others fail.

This morning, while driving into work another song played. It was “My Grace” by my friend in Israel, Pam Singer. In her lyrics she asks, “Is this Grace enough? Will tender mercies see me through?”

The reply she hears is: “My Grace Enough, My tender mercies new everyday. I crown your life with strength and loving kindness. My eyes are on you. My presence near My ear would hear the cry of your heart. I call you Mine, beloved forever. My Grace Enough.”

So what is the point of all my rambling here. 

1. I was worried about not going to see Josh on Wednesday evening, but later discovered that by not going, I was saved from the interstate shutdown and accident. 

2. After I went last night, I left feeling dispirited and out of the 900+ songs in my music library, two songs came on that reminded me that, a) I have done nothing to deserve God’s blessings and love and, b) all I have to do is ask him to fill me again, and again each day with his spirit.

3. This morning Pam’s song played as a reminder that no matter what I am going through, not matter what I am agonizing over, God’s Grace is enough. He hears me. He knows my heart and I am loved by Him.

Father’s Day Memories

Many warm wishes to all fathers out there today, especially to my sweet Chrissie. I wrote this ten years ago after our son had a health crisis and was in the hospital for over nine weeks. Chris was then and still is our rock, provider, and hero.

The midnight report, Sunday June 16, 2013

A pretty good weekend all in all.

Slowly removing IV medications as J is eating a little more. Thus far it seems PBJ’s are the food of choice, but hey whatever works. Dr. Menan says it takes a while to release old food phobias.

Taken several successful walks around the ward. Saturday and Sunday.

The incision is looking better, the fever is down as is the WBC.

I was able to get to the office on Saturday and pay the past due taxes and straighten out the payroll situation. Much love to Sho who chauffeured me again.

Becky brought homemade peanut butter cookies. Along with PBJ’s, a favorite at the moment.

Chris spent the weekend with [J]; talk about an awesome father. He has been the rock of strength on which we have all been leaning on. During this entire ordeal he, in addition to spending hours with us here and keeping up with his busy work schedule, he has driven around town feeding [J]’s fish, checking in at his office, picking up mail, even trepidatiously going to the data center to restart or service servers.

On this Father’s Day he came in with coffee and said the cafeteria lady told him his coffee was free if he had a picture of his son. He broke down in tears when he told me he showed her the one of him walking in the hall yesterday.

Nothing says I love you from your Father like emptying the urinal and holding you up as you walk.

Latest projections are that “maybe” if all progresses as planned, [J] could be released on Wednesday!! That’s my hope and prayer and from then on he improves by leaps and bounds each day.

Hope all you fathers out there had the opportunity to receive and give some love from your kids today. Hold them close and cherish each moment because as I posted on April 16, this quote from Lee Cowan a CBS reporter, “But they do remind us we don’t get to set life’s clock.While we may think we’ll have a tomorrow to say all the things we want to say, or should have said, what this week proved is that sometimes, that tomorrow doesn’t come — and the things left unsaid could end up one of our greatest regrets. “

Little did I know then the challenge that was to lie ahead in just a few short weeks. Thank you all for all your love, support and prayers. I cherish each and every visit, phone call, card and texts and encouraging word I/we have received.

To Quote Jim Croce

“Guess that it was bound to happen… was just a matter of time.” However, unlike Jim, I am not referring to a broken relationship but to Covid-19. Both DrB and I tested positive today.

I had a long run of avoiding the C19, two and half years. I traveled during the peak infection periods to Texas many times as my mother’s health was failing. I flew to Texas in September of 2020, passengers were seated in every other seat, full masks for the five hour flight, no food and no Bloody Marys at 30,000 feet! The only alcohol was canned beer or canned wine and that only in first class. Talk about flying anxiety! I felt for those people who relied on that to calm their nerves. I went back in January 2021 when she was hospitalized again, I went on Mother’s Day and again a week later to say goodbye. All while infection rates were high but I remained healthy.

There has been so much controversy about this virus, its origins, the vaccines and the treatments. The firestorms surrounding these issues could leave one with their head spinning. What to believe, who to trust, what is the right decision? I struggle with all of these and more. I was apprehensive about getting the vaccine. I prayed about it. I had only ever gotten the flu shot once in my life and I got it in 2013 because I was caring for my ill and immune compromised son. However, I have never known someone who died from the flu; but sadly, I knew several that died from covid. For that reason, and because I would not want to pass the virus to my son, I opted to get the shot, (see my post “God’s Kiss,” March 2, 2021) and I got the second, and I got the first booster and I got the second booster.

Even though I did get the vaccine, I believed and still believe it is a personal choice. Unfortunately for some there was a price to pay. Deep down I feel natural immunity is superior, however to get to that point could be hazardous and with this virus it seems no one was assured of the outcome. Would it be a mild case or a harsh one? The vaccine, as well, had risks for some, would it be effective, would there be a bad reaction, could it cause deaths? So many unknowns.

Life is full of “unknowns” and the older I get the more apparent and real that fact becomes. I don’t know what the next minute, or hour or day will bring. The more I see in life the more I understand that so much, whether it be joy or sorrow is out of my control. I may control the little things but the state of the world, illness or good health, life and death, or the future — these things are not in my control (sorry to say but not in yours either). So live each day as it might be your last and look to the future as if you have years and years ahead of you. Come what may, life is a gift.

My future for the next five days is quarantined with DrB and as many know that is a challenge in itself and I should add, he told me there no need to discuss who brought this virus home, so I won’t. So far it is looking weak, just some congestion, cough and sore throat. I might just make it through with a mild case.

In the meantime remember, that person wearing a mask may be immune compromised or have a loved one that is, and the person without one feels confident and free. Those who chose the vaccine had good and valid reasons and those who did not have the same. They made their decisions based on their beliefs and both groups based their decisions on risks they are willing to take.

As always be kind to one another. Everybody is going through some silent trial and kindness can make a heavy trial considerably lighter.

World IBD Day

Today is World IDB day. Before 2013, I couldn’t tell you what it was, or how it affected people who have it. Now, unfortunately I have several family members and friends who have been diagnosed with IBD and due to involvement with the Crohn’s and Colitis Foundation, I have met many other people who are battling IBD.

Per the CDC, IBD is: “Inflammatory bowel disease (IBD) is a term for two conditions (Crohn’s disease and ulcerative colitis) that are characterized by chronic inflammation of the gastrointestinal (GI) tract. Prolonged inflammation results in damage to the GI tract.” Sounds simple, right? It is not. It is painful, it is life altering and it can be deadly.

In 2013, my youngest son was diagnosed at age 22. We hit the learning curve very quickly as within a month he was rushed to surgery with a condition known as Toxic Mega Colon. His colon had perforated and it was removed. That was only the beginning of his 9 year battle. After five surgeries, two near exsanguinating bleeds, 3 biologics, 20+ hospitalizations and too many tests to list, he is still battling this debilitating disease and it breaks my heart to see him struggle and suffer.

This year the hashtag for World IBD Day is #ibdhasnoageIDB has no age. It attacks the young and the old but most often diagnosed between 15-35. It has no age and attacks men and women alike worldwide.

They have treatments: Steroids that cause weigh gain and fat deposits on various parts of your body, even a condition that’s called “moon face,” when where the fat lies changes and makes your face appear rounder and wider; biologics which suppress your immune system and leave you susceptible to serious infections, cardiac issues, joint pain, and even certain cancers. Today, I know more, than I wish I did but the most important thing I know is that – THERE IS STILL NO CURE.

If you know someone with IBD, offer your support, don’t judge what they eat, how active they are or say “you don’t look sick.” Believe me when I say they would not wish this on anyone.

Chronic Illness: you don’t get it until you get it.

https://www.crohnscolitisfoundation.org/what-is-ibd

More of his story here: https://emyloomwordswovenwithinmyheart.com/2017/05/19/villains-and-superheros/

Image courtesy of: worldibdday.org

Casting Cares

This post came up in my Facebook memories from 10 years ago.

“Abba Father, thank You for walking with me in every season of life. Today, I cast all of my cares on You.”

Today I am still casting my cares on Him.

Last Tuesday I got a call that my mother was at the hospital. She had a blockage in her left peripheral artery and there was no blood flow to her leg. There was some discussion about her age, 87, and whether we should move ahead with surgery or say goodbye. The decision to do surgery would depend on the vascular surgeons assessment.

The surgeon called me at midnight Tuesday and told me he thought he could help her, but there were many risks and pitfalls along the way. She might not survive the procedure, they may not be able to restore blood flow below her knee which would bring a new set of problems and a host of other issues.

The decision was not hard for me, although she has dementia, she had still been moving around the nursing home being a wisecracker and spreading joy. I wanted to give her a fighting chance.

I arrived on Wednesday and she was in the ICU – it appeared that the blood flow was completely restored all the way to her toes but the first couple of days it waivered a few times and her heart was in Afib.

Today, they are moving her back to rehab. She cannot move her leg or toes and she has no sensation but pain and cold even though her foot is warm.

The doctor who saw her Tuesday night said he is amazed at how well her leg is doing. Best outcome for blood flow return he has ever seen. As far as no feeling in that leg (except for the pain) and inability to move it that will take time and physical therapy for that to return.

My sister and I are going to follow the ambulance back to the nursing and rehab facility and give her lots of love and kisses before she goes back inside. She will be in quarantine for 14 days.

I know the day will come when I will say my last goodbye, but it wasn’t this time and it’s not today.

This picture was the day after surgery and she had let me braid her hair. I took a picture today and she stuck her tongue out so you know that sass is back!

❤️ A multitude of thanks to the vascular surgeon Dr Helmer and his kindness. As well as all the staff at Ascension Providence Hospital in Waco.

Speak to Me

How long Lord, how long?

No regaining what was lost
Is there not a cure?
Is there not an answer
To ease this pain?

How long Lord, how long?

It is seven years of suffering,
Seven years of fighting,
Seven years of youth gone
Seven years too long.

How long Lord, how long?

When can there be freedom?
Freedom from agony…
Freedom from medication…
Freedom from heartbreak ?

How long Lord, how long?

What was the crime for this?
What is the gain?
How can this be turned for good?
Don’t understand, I can’t see how.

How long Lord, how long?

Have the prayers fallen on deaf ears?
Was it my sin?
Will I ever see the joy
Will happiness and health return?

Lord, I wait.
Lord I cry out to you…
Lord please hear my plea,
Lord my prayers are exhausted.

How long Lord, how long?

Psalm 61:1-2
Hear my cry, O God; Attend to my prayer. From the end of the earth I will cry to You, When my heart is overwhelmed; Lead me to the rock that is higher than I.

Photo: The Encounter painting by Daniel Cariola, located in Magdala, Israel

Life and Loss

Life is trying these days. So much adjusting. Adjusting to a virus that has us second guessing each move. A virus that takes its greatest toll on the elderly — in loss of life and in loss of emotional support.

As I have written before my mother is in a nursing home facility in Texas. A facility that’s 2000 miles from me. I was visiting once every couple of months but once this virus hit I have been unable to visit. The facility was locked down on March 12.

Since that time I noticed a decline in my mother’s health, her mental health and physical. Every phone call she ask when I’m coming to see her. Every phone call I tell her no one can visit because of the virus. Every phone call I tell her the virus is everywhere.

She began asking about different family members and saying she was worried about them. She would say things like, “I wonder if they’re dead. Are they dead?”

One person she asked about often was her cousin Gladys, they were as close as sisters. A few months ago I was talking to my mother on an early Sunday morning and she asked those questions about Gladys.

Gladys lives in North Carolina. Only six months younger than my mother she has no dementia and lives a full life. So that morning I called Gladys then called my mom back and set up a three-way call. They talked for 45 minutes laughed and giggled just like schoolgirls. It was so sweet and Gladys was so patient with my mother as she repeated the same questions over again. The questions were mostly about the present because the past my mother remembered fully.

Sadly yesterday, I learned that Gladys had passed away, a casualty of the COVID-19 virus. Such a great loss to her family. She full of energy, so loving and giving to all around her. I loved to hear her speak, her southern accent so much like my grandmother’s in the way she called me darling drawn out into a melodic – “Daah-lynn’.”

Now I am faced with a choice as to whether I should tell my mother. One side of me leans toward not telling her. Her mental decline has been so noticeably great since this lock down. The other side of me faces the same old question can I/should I lie when she ask about her?

After am e-mail exchange with the social worker, Christy, (she is an angel on earth) I decide I will not tell her. Christy tells me my mother has days when she will have a moment of clarity and remember the loss of her step-son earlier this year. She mourns all over again and it takes days for her to recover. Just deflect the question or tell her Gladys is fine. I have decided on the latter.

After all, Gladys is fine, she is more than fine. She is in the Heavenly realms with her maker and the lover of her soul. They will meet again one day.

Unclear Vision

2020 Vision
A perfect sight they say
But this year
That is 2020
Didn’t turn out that way.

Winter’s end turned to spring
And started with great hope,
Sadly spiraled downward,
When people started buying
All the TP and soap.

The virus that at first
We were told was not a worry,
Soon showed it had a deadly side.
The future became uncertain
More crazed, weird and blurry.

The message came,
Fifteen days to slow the curve.
With lockdown it was slowed
But days grew into months
Which cause many to unnerve.

Keeping a six foot distance
Our faces fully masked,
Lest we make a human touch.
Following all the protocols
Doing what was asked.

One tragedy upon another
A murder lit a fuse
Protests turned to violence
Lawlessness arose
The situation to abuse

Phases of reopening
Now we’re into summer
This has become a waiting game
And this year of 2020
Is thus far a real bummer.

2020 Vision
Is always better in hindsight.
Knowing what we know today,
We wonder
If all choices were exactly right.

Hopefully by year’s end
We’ll see the past more clearly
With empathy and wisdom
Not taking for granted
All the freedoms we hold dearly.

Trish © 8/4/20

 

Journey of Faith

Tomorrow: My youngest son’s 30th birthday. For over 10 years he has battled with several auto-immune diseases. Sometimes referred to as invisible diseases, as many suffer without external signs that are obvious to those around them, but for them they are more than apparent. His decline over the past year and a half has been heartbreaking to witness.

Prompted by a video made by friends regarding healing, where they visited the pools of Siloam and Bethesda and prayed, Chris and I made the decision to use our upcoming Israel trip to visit these places and pray for our son and pray for healing.

As time drew near I worried that my planned journey may have some element of superstition attached to it. That going there gave the appearance that those places held some sort of power that bordered on the mystical where I was expecting a miracle that God could only deliver from there.  I did not want that.

We talked about it and decided we would go as planned and pray; to go and be open to any message God had for us.

We started our day early and had reservations to stay overnight at the American Colony Hotel in Jerusalem. We made it to the American Colony about 12:30, as our room wasn’t ready, we hired a taxi and made our way to the Pool of Siloam.

The driver drove through the Arab neighborhood in East Jerusalem to find the entrance where our friends, who had made the video about healing, had gone. The man at the entrance sign near the street told us we had to go through the City of David to reach the pool. So the taxi took his back up the hill and dropped us off at the entrance.

When we got inside we paid the entrance fee and were told we’d have to walk through the Canaanite tunnel, a narrow tunnel from an earlier period of more than 1000 years older than Hezekiah‘s Tunnel, to reach the Pool of Siloam.

Oh my, what a walk, we ventured for 30 or 40 minutes through this long and narrow passageway — down old stone stairways, modern steel wire stairways, down and down more and more stairs — finally to reach a tunnel that looked more like a crack in the earth of less than a foot and a half wide in many places. It was dimly lit and had a stone floor less than a foot wide in places.  However, even though it widened higher up, I still had to turn sideways in many places to squeeze through. When we finally reached the end and exited the tunnel,  we were in the Arab neighborhood where the taxi had originally taken us.

We continued to follow the signs as they lead us through the residential streets and at last we arrived at a worn, rusted gate painted green with paint that looked like it had begun to peel years before.  I was so hot and tired and somewhat frustrated over the detour but it set me thinking.

That path through the Canaanite tunnel with ups and downs on a rocky floor, its twists and turns squeezing through narrow spots, reminded me of the journey we take in life when we have trials. We cannot see the end and we do not know what lies around the next corner,  or what it’s gonna take to squeeze through the next difficulty, however, we must keep pressing forward.

We walked through the gate that lead to the pool and down a steep stone stairway.  No one else was there; it was a rectangular space 360C348C-BA82-4E4D-9D3D-B1E32C233EE5enclosed with rock walks and the quiet sound of water trickling through the shallow pool.    

Chris and I said a prayer.  We prayed, “Lord we’ve made this journey to this pool not that it’s a mystical place where we would get special attention to our prayers but we came here as an act of faith, a reminder that you are a God that heals, a blind man was healed here and that you are still a God that heals.”

Breaking Free

It is a Sunny Fabulous Fantastic Tuesday and we are packing up to go home!!! Breaking free a day early!

~ We love Dr. M ~

Five weeks ~ three surgeries ~ two trips to ICU ~ three stays in Imcu ~ 10 units of blood ~ five units of Plasma ~ hundreds of nurses ~ dozens fo doctors ~ antibiotics, pain killers, steriods ~ MRI – Cat Scans ~ Picc lines ~ TPN ~ AND buckets of ice chips: $????

Answer to thousands of prayers: PRICELESS
.•*¨`*•..Our God is an Awesome GOD .•*¨`*•.

“You, God, are awesome in your sanctuary; the God of Israel gives power and strength to his people. Praise be to God!”Psalm 68:35

An Awesome Father

The Midnight Report, Sunday June 16th, 2013. A pretty good weekend all in all.

Slowly removing IV medications as Josh is eating a little more. Thus far it seems PBJ’s are the food of choice, but hey whatever works. Dr Menan says it takes a while to release old food phobias. Taken several successful walks around the ward. Saturday and Sunday. The incision is looking better, the fever is down as is the WBC.

I was able to get to the office on Saturday and pay the past due taxes and straighten out the payroll situation. Much love to friend who chauffeured me again.

BFF brought homemade peanut butter cookies. Along with PBJ’s, a favorite at the moment.

Chris spent the weekend with Josh; talk about an awesome father. He has been the rock of strength on which we have all been leaning on. During this entire ordeal Chris in addition to spending hours with us here and keeping up with work at SubTerra, he has driven around town feeding Josh’s fish, checking in at his office, picking up mail, even trepidatiously going to the data center to restart or service servers.

On this Father’s Day he came in with coffee and said the cafeteria lady told him his coffee was free if he had a picture of his son. He broke down in tears when he told me he showed her the one of him walking in the hall yesterday. Nothing says I love you from your Father like emptying the urinal and holding you up as you walk.

Latest projections are that “maybe” if all progresses as planned, Josh could be released on Wednesday!! That’s my hope and prayer and from then on he improves by leaps and bounds each day.

Hope all you fathers out there had the opportunity to receive and give some love from your kids today. Hold them close and cherish each moment because as I posted on April 16, this quote from Lee Cowan a CBS reporter, “But they do remind us we don’t get to set life’s clock. While we may think we’ll have a tomorrow to say all the things we want to say, or should have said, what this week proved is that sometimes, that tomorrow doesn’t come — and the things left unsaid could end up one of our greatest regrets. “
Little did I know then the challenge that was to lie ahead in just a few short weeks. Thank you all for all your love, support and prayers. I cherish each and every visit, phone call, card and texts and encouraging word I/we have received. ❤

My Mind’s Wanderings

For the past few days sitting quietly contemplating the events of the past two weeks, I have tried fitting the pieces into place. Where the huge decision that was faced two weeks ago was to commit to the Remicade treatment. How insignificant that decision seems now. Only three days later my son was facing major surgery and a few days after that a second surgery and then third surgery to control bleeding – to the point his life was in the balance.

When the bleeding started again three days later he again was rushed to ICU. There nurse Steve was methodically checking drains, monitoring his heart rate, drawing blood. Inside I was panicking, remembering Friday evening, wondering why they weren’t starting the transfusions because Friday it had taken so long to get the blood it seemed life was ticking away.

I, trying to remain calm, said to Steve, “you know from this side it looks like nothing is happening.”

He reassured me. He said that they had the blood type on hand, that if he needed they could get it within minutes, that they want to check the hematocrit levels, monitoring the rate of output on the drains, access whether the bleeding was slowing — do things carefully and in timely manner. Make sure every decision is based on the least risk to my son’s health. In the end, they did give him more plasma and blood; and with that the bleeding stopped.

So I’m here thinking about all of these things and I hear my words to Steve; “From this side it looks like nothing is happening.”

I think sometimes I do the same thing with God. I pray about situations, the future, what God’s plans are for my life and sometimes from this side it appears nothing’s is happening; but I understand that even though it appears that nothing is happening, God is in control. He knows all the details of our lives. He knows all the pieces that must fit together perfectly. He knows when we need life sustaining blood and when more extreme intervention is needed. He also knows when we just need to wait as he watches our vitals, checks where we are losing strength and then he refills us.

6 June 2013 at 17:59