Family Dynamics – It is all Complicated

The time has come to write about this or I will not be able to move on.  So I will lay it all out here; all this baggage I’ve ruminating over the past few months.

It is a family thing, the past, the present, life and death… brought on by recent events involving my brothers.

I was the youngest of three, the only girl, with two full biological brothers. One brother 5 years older, William (who growing up was called Sonny) and the other Howard. 

Our mother left our father when I was just a baby and we grew up with our mother and step-father, Melvin. My oldest brother was 8 when Melvin came into our lives; I was only 3. 

Melvin was a good ol’ boy from east Texas. I wrote about him earlier and the other two step-fathers in my life. 

My life under Melvin was a little more sheltered as a girl but I did endure the pain of “whippings” as a child. Spanking is too kind of a word. These were harsh lashes with a leather belt that left strap marks and bruises across my legs and body. It was part of old southern child rearing method but it went beyond not sparing the rod.

My brothers on the other hand, encountered undue abuse from Melvin.  Under the rule of an authoritarian dominant man they suffered emotional and physical punishment well into their teens. One small step out of line was met with disproportionate severe corporal punishment. 

Maybe some sort of male rivalry was involved as well. Melvin was only 10 years older than Sonny.  I remember once when he was a senior in high school, Melvin came after him with a whip and swung at him with a chain.

I addition, before Melvin, Sonny witnessed alcoholic rages against our mother by our biological father. 

As soon as he graduated he left home and never returned. 

Howard, was just 16 months older than me. He was very intelligent.  He used to read the encyclopedia and memorize pages in the dictionary. He also played the trumpet and was a big fan of Herb Alpert and the Tijuana Brass. 

He was still living home when Melvin left our mother for another woman. Howard and I both had to make our way through the step-father who came next. 

In addition to all this physical abuse, over the years I harbored another family secret. I had endured sexual abuse by my brothers from a young age.

The stepfather that came next was far more interested in me than was proper. I could see the signs of coming abuse. I wanted out any way I could.

Thankfully, I met the son of a local restaurant owner, four years my senior. You could say, we fell in “love” or we both were both looking to escape. Either way we did escape and never looked back. 

We married and I left home at 14.

The reality of childhood for all of us in our home, behind closed doors, was that it was fraught with abuse, insecurity and trauma. There were good times but they were overshadowed by the fear that at any moment things could flip.

Within 2 years, 1968-70, my brothers and I had all move out of the abusive world and went our separate ways. 

We had only casual contact over the next 20 years. All of us were part of military families and lived miles apart. 

As I grew older effects from childhood sexual abuse became a stumbling block for me.   I had trust issues. I also had faith issues. I was looking for love in all the wrong places, as the country song goes.

In the wake of the major child abuse stories of the late 80’s, I was forced to come to terms with it. Thirty years old and I had never told a soul about the abuse.

I confronted both of my brothers with unsatisfactory results. It was written off as child’s play or something “I wanted,” by Howard. Sonny did not want to acknowledge it or discuss it. No resolution was coming. 

After the response I received from Sonny (the worst offender) we literally had very little to no contact for years. I did not see either brother again until 1999 at my grandfather’s funeral.  I never saw Howard again after that.

Both of my brothers were alcoholics.  Sonny quit drinking some 20 years ago but Howard, whose drinking started in his teens, was a life long alcoholic. He also had mental issues. 

Although I never saw Howard again after 1999, he would call me drunk in the middle of the night. He would tell me that the Italian mafia was after him and he was in the CIA. He would call my office and speak to whoever answered the phone and tell them all these same crazy stories. The final straw was when he called my house and spoke to my youngest son, Josh. 

He told Josh he had gun and was going harm himself. That time and once before, I called the local police to do a welfare check on him.  

After this, I blocked him from all my numbers… work, home, cell phones. My mother told me that he didn’t know why I wouldn’t speak to him anymore.  I told her, “Yes he does.”

I saw Sonny again in 2012. He was living in Las Vegas and I flew down to see my Auntie who was in a tournament there. She arranged to have dinner with him but didn’t tell him I was there. I was the surprise. It was a cordial meeting, nothing more.  

Over the past 15 years he had many health issues. As our mother aged and dealt with dementia, I became her financial and health decision-maker. He would call and discuss issues he was seeing in mother. He would extend some encouragement and offer to help in any way he could but I discovered he couldn’t do much. 

I blogged about what I was going through dealing with my mother’s dementia and lamented that my brothers were no help, but thankfully they were no hindrance either. 

When my mother died neither of them came to her funeral. Sonny sent flowers and had called to say goodbye before she passed. Over the years he had been very faithful and loving to Mother. Although he did not visit for many years, he called her several times a week. 

Howard and mother had a hard relationship. He could call sober and all was well but when he called drunk, he was abusive. The last few years of her life she stopped taking his calls.  

Just days before she passed, I asked the social worker at the nursing home if she would call and tell him she was dying. She did and he agreed to speak to mother. She was no longer conscious but for all the things Howard did that were horrible, that day he stepped up to the plate. He said what needed to be said so she could pass in peace.  

I did not speak to him that day or anytime since she passed. 

All of this background to get to what I came to say today so that I can close the door on the past. Close the door because:

Both my brothers died this year. Four months apart. 

Sonny died July 22. Complications from cancer surgery years ago and cirrhosis of the liver. Even though he quit drinking 20 years ago, the damage was done. 

Howard died on November 20 just before Thanksgiving. His neighbors had found him unconscious in his house.

I was contacted because I was thought to be the only surviving blood relative. I told the hospital he had a daughter but she did not know him growing up. I contacted my niece and told her I would act as decision maker if she wanted. She thought about it and called me back and said she felt it was her responsibility. 

He was in the hospital for a week and never regained consciousness. We found out that he also suffered from cirrhosis of the liver, as well as he had cancer in his lungs and brain. 

In the end I am thankful my niece made the decisions.   I would have found it difficult. 

They are all gone now. My father, mother, all the step-fathers and my brothers. 

It is all so complicated and confusing in my mind. I was sad, but never shed a tear for my brothers although it seemed I should have. 

Being the only one left from your childhood family is very sobering. I turned 70 just a few months ago.  I have struggled the past few weeks with the reality of my immortality.   I hope to live past the 71 and 74 years my brothers had. 

Mostly, I pray that I can move beyond all the memories of the past that have kept my mind captive for so long. They are all gone, and in many ways, I am free.  

Every Anniversary is A Step to Healing

Four years, four years ago today my mom passed from this world to her forever home. I think of her often.

I analyze and reanalyze every significant event from my childhood until the day she passed.

As the years pass, I see more clearly that our relationship was like many other mother/daughter relationships… always evolving, with ups and downs, give and take, frustrations and acceptance.

In the end, I was by her side. I held her hand, I sang hymns to her and I prayed for God to take her home and end her suffering. God answered that prayer on Pentecostal Sunday. The day God sent his Holy Spirit as a comfort to us, he took her home.

I knew her passing was inevitable and I thought was prepared. I thought I had already grieved over the prior few weeks but the moment she passed, I was overwhelmed with unexpected emotions. Our journey was over.

Below is a blog post from several months before she past. I had visited her but because of Covid we had limited visits. In that time, however, we made our peace.

January 2021

No Fight Left … Only Love

I saw my mother yesterday. She was a little confused and in quarantine because of her latest hospital visit. 

Over the years my mother and I have had our shared joy and trials, times when we saw eye-to-eye and many times that we clashed. There were times I felt suffocated and pulled away and times she clung tighter.

The last few years because of her decline into dementia it seemed the clashes were more frequent and heated. I was not-so-affectionately called the “bossyone” In reality, I was trying to enable the very thing she wanted, to remain independent in her home, by making sound decisions and managing her finances. 

An unfortunate fall in 2018 lead her to rehab where she could no longer hide her advancing dementia.

We have been through a process the past three years. Just as infant grows and advances at a rapid pace between birth and four years. It seems dementia takes a turn and in three short years my mothers abilities have declined at a rapid pace.

She had surgery in October and the decline has been even more sharp since then. When I saw her this week she was so frail and helpless, she stared off into space as a newborn does when it is seeing the strange new world for the first time. She found comfort in being held, holding my hand and was soothed by the sound of music – the old hymns she would play for hours. The words to those she has not forgotten.

We have gone from my birth and total dependence, to growing, changing, challenging, disagreements, coming together, growing apart, to facing the honest truth of our relationship. Then it reversed: growing apart, coming together, disagreements, challenging, changing (especially in my views about her illness and motives), to her growing old and total dependence on others.

Now she just wants to be loved, be safe and protected. We have come full circle from the newborn daughter a mother held in her arms 65 years ago to yesterday as a daughter held her innocent elderly mother in her arms.

I braided her hair and put the pearl necklace on her that my auntie sent. Girls should always wear their pearls.

There is no fight left, what is left is only pure love.

Revisiting – No Fight Left ~ Only Love

In this month of love I am reblogging this post about one of the last sweet visits I had with my mom.

It was a January visit and I came down because she had a brief hospital stay. When she came back to the nursing facility, she had to be an isolation because Covid protocols were still being practiced.

I am so thankful I had these few days with her, even though visits were limited to one hour because of Covid.

After this visit, I came home and did not return until Mother’s Day in May. When I saw her, she had declined dramatically.

We had no conversations, and she was in so much pain and agony. It was hard to see her suffer.

This one day in January was a beautiful final chapter of the era of dementia. It was a healing day for me and it helped me walk with my mother through her final days.

https://emyloomwordswovenwithinmyheart.com/2021/01/10/no-fight-left-only-love/

Memories of My Mother

I have written about my mother many times here. Mostly about our lives in her later years as we both dealt with her declining health and dementia. I’ve been thinking a lot about her the past few weeks with Mother’s Day this Sunday and her 3rd heavenly anniversary on May 23rd.

My mother and I had a close relationship yet it was intermixed with differences that led to frustrations with one another. One of the last birthday cards I got from her had a colorful bug on the front. Inside it said something like.. “mothers and daughters sometimes they bug each other, that’s just what they do.” That was the best and truest card I ever got!

However, in remembering my mother these past few weeks my memories have gone further back than the last few years of her life to things I remember from my childhood. For most of that period in time my mother suffered from depression. As a young child, I remember many occasions where I would see her sobbing, crying tears of of great sorrow as she sat alone. Sometimes she would share her pain with a friend through her tears. At those times I probably overheard more than I should about her heartaches and the abuse that she suffered.  

Even while dealing with depression she managed to try and look on the better side of life. She was resourceful and talented in a variety of ways.  She was an extremely good cook, she made the best fried chicken, not battered – only floured but it was crispy and juicy beyond belief. Other savory favorites she made were fried potato wedges that she tossed in flour before frying which made them come out so crunchy; yellow squash casserole cheesy yummy, it was like a vegetable version of mac and cheese… she made scrumptious mac and cheese too.

In the sweet department she would make peanut brittle that was always perfect. One of her specialties was fried raisin pies.  I know it sounds weird but they were delicious.  I tried making them once and they were OK but it was a bit of a fiddle and I am more the make-it-quick kind of cook.  (I attached a picture of my attempt that was 2011 and I’ve not made them since).

My mother worked off and on as a waitress and she also took in ironing to earn extra cash. In addition, we lived in the country and she always had a big garden; she canned her vegetables and made special relishes (chow-chow as they call it in Texas).  I remember summers in Texas pulling weeds in those big gardens, it was hot and those rows seemed like they were a mile long.

Mother was also an excellent seamstress. She made most of my clothes and her own clothes. She always said she had wanted to be a designer and she would draw her own patterns for ideas she had. She would make the most elaborated western shirts for my step-father. Many people admired the swirled and elaborate yokes and matching pocket flaps she created. She bought fancy pearly snaps from the Tandy Company and attach them to the shirts with a special die and a hammer.

I never remember her taking even a sip of alcohol but she loved her Pepsi Cola in a big mayonnaise jar with a paper towel wrapped around it held in place with a rubber band. Speaking of mayonnaise, she loved mayonnaise and peanut butter sandwiches; just thinking about watching her eat them still makes me cringe. 

She was a woman that always had a heart for God. We attended the Baptist church and one of my earliest memories in church was sitting beside her holding her hand. She was a woman that sought God, she was faithful even though she had many struggles in life. She always did the best she could with what she had and she relied on God as her strength and her shield.

Mother’s Day 2021 was the last Mother’s Day I spent with my mother and just 5 days later, I was called back to Texas to say goodbye. She died on Sunday, May 23rd, Pentecostal Sunday, I played the hymn “Softly and Tenderly” and sang along with the music softly in her ear.

“Softly and tenderly Jesus is calling, Calling for you and for me.
See on the portals He’s waiting and watching, Watching for you and for me…Come home, come home, Ye who are weary come home…”

This Mother’s Day my mother is home. She has no more pain, no more sorrow, and she is singing praises to her Lord and Savior.

Mother and me 1986

My attempt at fried raisin pies.

Remembering Mother

I’ve been thinking all week about my Mother and also today on what would be her 90th birthday.

I reminisced about her last few weeks and the time Paulette and I spent with her.

Eight months before she passed away, she had an arterial blockage. At the time, I was gently encouraged to keep her comfortable and let her go peacefully but I could not face that.

Although her dementia took away a lot of her memories, she was still engaging and she could be so funny and brought joy to others. So I pushed for surgery, which was technically successful, it restored the blood flow but she never walked again. With Covid fears and restrictions still in full swing she declined rapidly.

Perhaps I shouldn’t have approved the surgery, before that she seemed to have lots to give in life. Either way, it was a no-win situation. Had I let her go then, I think I would have still gone through a period of guilt. I am sorry she had to suffer.

It comes down to the final verse in this Wm Randolph Hearst poem ~’The River’

“So don’t ask why –
We live or die,
Or whither, or when we go,
Or wonder about the mysteries
That only God may know”

I love this picture of my Mother. It was taken two months after the surgery. I had given her the pearls my auntie sent her and she let me braid her hair. We spent the afternoon singing hymns 💕 It was hard to leave that day, but it was a day I will always cherish.

Netflix’s After Life

It was full of foul language, filthy jokes, drug use, suicide, sexual innuendos, lewd actions, and off color references to people who are over-weight and disadvantaged. Everything I distain, but when it was over, I sobbed and sobbed.

The description drew me in. Tony whose wife, Lisa, of 25 years died of breast cancer. He was angry at the world. He took his anger out in everyone, even those who cared and tried to help him.

He goes through the motions during the day at night he drinks and watches videos of his life with Lisa and videos she made for him before she died.

He wants to die. He tries to commit suicide but he can’t quite get up the courage and several times his dog stops him. At one point he befriends a heroin addict and asks him to introduce him to the poison in an effort to numb his grief. Later he discovers the addict is also suffering from loss and wants to die but does not have enough money to buy what it takes to end it all. Tony supplies the funds and it is unclear if he feels any regret or sorrow about his actions.

Tony is a reporter for a local small town newspaper and through that he meets a variety people with their own quirks and hardships that come in and out of his life. Each one had something to share with him.

In the mix of all this he also lost his dad to Alzheimer’s. His interactions were familiar, repeating answers to the same questions and the sadness on days his dad didn’t know who he was. I really connected to his visits with him.

He doesn’t believe in God, but he thinks about it. His wife is gone, she wanted to believe there was an afterlife, but every serious conversation was an opportunity for a tasteless joke to him. Later he wonders of he destroyed her hope.

Hopelessly lost without out his wife, his soul-mate (if only he could believe we had souls), through the 18 episodes he slowly works his way through the grief. All the music through out the series is soft, sentimental, ballad-like and it ends with Joni Mitchell’s ‘Both Sides, Now.’

I won’t share the end, but he meets someone that puts a question to him that he struggles to answer, and he cannot answer in his usual cocky sarcastic way. He has a moment, an epiphany. That’s when my tears started.

I really disliked so much that was this movie, that listed above, the constant use of the F-word and worse but the deeper message touched me

Life, love, craziness, struggles, guilt, loss… things we all experience. Experiences I have been battling these last couple of years, perhaps I was holding more in than I thought, because the rivers of tears let loose.

After Life – Genre: Black Comedy – Written, Directed and Starring: Ricky Gervais

Love Lifted Me

I once wrote about whether serendipitous events were by coincidence or divine appointment and whether God can use any means to send specific messages. I believe an experience that touched my heart today is more than a coincidence and one of those times that God’s message was for me.

It started this morning when I posted this picture because today is six months since my mother passed. I woke up thinking of her and she has been on my heart all day and this evening.

In 2012, Chris and I took my mom to Israel with us; to say it was a challenge was an understatement. During that trip I realized how badly her dementia had become. Chris was a saint, because some days I lost my patience.

During the entire journey my mother sat behind me in the car and she hummed or sang the hymn “Love Lifted Me”. Over, and over again, for 10 days. I was convinced it was a power struggle and she was doing it just to spite me. Several times I tried to change the tune. I tried playing music on my iPhone (even gospel music which she loved) but “Love Lifted Me” continued. At some point and I don’t think I was very nice about it, I asked her to please stop.

This November I have been making a daily post about thankfulness and things in my life I am thankful for. I often start with a quote from wise people that have passed their wisdom down to us.

This day’s quote was, by Samuel Butler: “Let us be grateful to the mirror for revealing to us our appearance only. ”

Oh how true is that! I wrote about my heart that could be ugly and less than what God wants it to be. Reflecting back now I know, sadly some of days on that trip my heart was not where God wanted it to be.

So tonight I posted “Reflection of My Heart,”to my blog and logged onto Facebook to share it there. In my news feed were ‘suggested’ videos as usual and the first one up was Randy Travis singing “Love Lifted Me.”

Coincidence, I think not. I do not even own a Randy Travis CD, album or song. I picked a quote to write my “thankful” story without any particular situation in mind and my mother was on my heart because of the time since her passing. Three things came together today and combined they sent a message that struck deep in my soul.

Yes, I played the video of “Love Lifted Me” all the way through and my heart could hear my mom’s voice humming along in the backseat as we traveled through the Holy Land.

Here is the link. Randy Travis. Love Lifted Me

https://youtu.be/5KX-TnmSNqQ

Long Journey Home

It has been a long week sitting at Mother’s bedside. She is still with us and she has not had food or drink in 3 days. We are not eager to let her go but want her suffering to end.

On Wednesday night the nurse said that she felt Mother is waiting on someone. I told the only one who has not said goodbye (of her children) is my brother who is an alcoholic. They had not spoken in ten years. I told her that I cannot call him as the last calls I had with him were abusive.

I told my mother on Tuesday that if she was waiting to hear from Howard, it was ok to go because God was going to handle it and he’d explain it all once she was in heaven.

Yesterday, Thursday, we talked to the social worker about calling him. The social worker did call my brother and he agreed to speak to Mother. Miracles of miracles, he was decent and told her he loved her and it was ok to go. Actually he said more than I ever hoped for or expected. He tried to bring up their past relationship issues and the social worker told him “That is in the past, this is now, and your Mother needs to know you’ll be ok when she leaves.”

I could have never had that conversation with him, it would have ended in an abusive tiraid.

When the night nurse came in, she told us that after we left on Wednesday night a young aid came on duty who had a good relationship with Mother. After she went down to check on Mother, she came back and asked “Has Mrs Patsy been verbal at all?” The nurse told her she had not been for days. The the aid said, “She just told me ‘I am waiting for somebody’ “

We told the night nurse about the call to my brother. She called the aid at home on her day off and brought the phone to us so she could tell us exactly what happened.

I pray that ‘someone’ was my brother and she can now be released from the cares and worries of this world and move onto glory.

Ten minutes after the call to the aid she showed up to see us. She was so young and sweet. She told us she would dance down the halls with Mother on the way to the showers and how Mother want to be sure she didn’t lose any of her big bobby-pins. Oh my, we all knew about those wave holding bobby-pins and we all laughed. I know if Mother could still hear she was laughing with us. It was a sweet, sweet moment.

Today is Friday, May 21. Say a prayer that God will call her home.

No Fight Left … Only Love

I saw my mother yesterday. She was a little confused and in quarantine because of her latest hospital visit.

Over the years my mother and I have had our shared joy and trials, times when we saw eye-to-eye and many times that we clashed. There were times I felt suffocated and pulled away and times she clung tighter.

The last few years because of her decline into dementia it seemed the clashes were more frequent and heated. I was not-so-affectionately called the “bossyone” In reality, I was trying to enable the very thing she wanted, to remain independent in her home, by making sound decisions and managing her finances.

An unfortunate fall in 2018 lead her to rehab where she could no longer hide her advancing dementia.

She will still produce a beautiful smile on request.

We have been through a process the last three years. Just as infant grows and advances at a rapid pace between birth and four years. It seems dementia takes a turn and in three short years my mothers abilities have declined at a rapid pace.

She had surgery in October and the decline has been even more sharp since then. When I saw her this week she was so frail and helpless, she stared off into space as a newborn does when it is seeing the strange new world for the first time. She found comfort in being held, holding my hand and was soothed by the sound of music – the old hymns she would play for hours. The words to those she has not forgotten.

We have gone from my birth and total dependence, to growing, changing, challenging, disagreements, coming together, growing apart, to facing the honest truth of our relationship. Then it reversed: growing apart, coming together, disagreements, challenging, changing (especially in my views about her illness and motives), to her growing old and total dependence on others.

Now she just wants to be loved, be safe and protected. We have come full circle from the newborn daughter a mother held in her arms 65 years ago to yesterday as a daughter held her innocent elderly mother in her arms.

I braided her hair and put the pearl necklace on her that my auntie sent. Girls should always wear their pearls.

There is no fight left, what is left is only pure love.

Life and Loss

Life is trying these days. So much adjusting. Adjusting to a virus that has us second guessing each move. A virus that takes its greatest toll on the elderly — in loss of life and in loss of emotional support.

As I have written before my mother is in a nursing home facility in Texas. A facility that’s 2000 miles from me. I was visiting once every couple of months but once this virus hit I have been unable to visit. The facility was locked down on March 12.

Since that time I noticed a decline in my mother’s health, her mental health and physical. Every phone call she ask when I’m coming to see her. Every phone call I tell her no one can visit because of the virus. Every phone call I tell her the virus is everywhere.

She began asking about different family members and saying she was worried about them. She would say things like, “I wonder if they’re dead. Are they dead?”

One person she asked about often was her cousin Gladys, they were as close as sisters. A few months ago I was talking to my mother on an early Sunday morning and she asked those questions about Gladys.

Gladys lives in North Carolina. Only six months younger than my mother she has no dementia and lives a full life. So that morning I called Gladys then called my mom back and set up a three-way call. They talked for 45 minutes laughed and giggled just like schoolgirls. It was so sweet and Gladys was so patient with my mother as she repeated the same questions over again. The questions were mostly about the present because the past my mother remembered fully.

Sadly yesterday, I learned that Gladys had passed away, a casualty of the COVID-19 virus. Such a great loss to her family. She full of energy, so loving and giving to all around her. I loved to hear her speak, her southern accent so much like my grandmother’s in the way she called me darling drawn out into a melodic – “Daah-lynn’.”

Now I am faced with a choice as to whether I should tell my mother. One side of me leans toward not telling her. Her mental decline has been so noticeably great since this lock down. The other side of me faces the same old question can I/should I lie when she ask about her?

After am e-mail exchange with the social worker, Christy, (she is an angel on earth) I decide I will not tell her. Christy tells me my mother has days when she will have a moment of clarity and remember the loss of her step-son earlier this year. She mourns all over again and it takes days for her to recover. Just deflect the question or tell her Gladys is fine. I have decided on the latter.

After all, Gladys is fine, she is more than fine. She is in the Heavenly realms with her maker and the lover of her soul. They will meet again one day.

The Last Time

I wish I could remember
The last time I touched or saw you,
As I departed was it with a joke and smile,
Or were you sad or blue?

I wish I could remember
What the words were we said,
And as we said our goodbyes
If any tears were shed.

I wish I had only known
That touch would be our last,
And that we’d be kept apart
By a quarantine that came along so fast.

I’m certain that we always
Left with an embrace and a kiss,
But little did we know
About the time we’d miss.

I wish I had only known
That visit would be the last
And with this awful illness
You’d be gone so fast.

I wish I could remember
If I held you extra tight
Or if you stood to watch
As I disappeared from sight.

I wish I could remember
That day so long ago
A day that was like any other
Except for what we didn’t know.

I wish I could remember
As it held our last earthly embrace
But we’ll embrace again
When we see the Father’s face.

Trish ©️

If it were Possible Not to Forget

What do you do when your mother forgets you?

Christmas 2016, I surprised my mother with a visit. As I stood at her door she greeted me with a simple “hello” and told me to come inside before her cat got out. Once inside, she looked at me and said, “Do I know you?” I replied…”I don’t know, do you know me?” Then she realized who I was and the tears began to flow. That was three years ago and I chalked it up to the fact that she had recently fallen, hence the reason for my surprise visit.

After this visit there were several more and one that included visiting her doctor with her. He had been telling my step-sister (who will will call my sister here on out because she is closer to me than biological siblings I have and I love her with every ounce of my being) and me that the time was coming she should not be living on her own. She was fighting for her autonomy with every bit of fight she had left. She avoided going out, she told white lies, she pleaded with her friend to not tell us about her memory lapses or drives in the night thinking it was daytime…she knew she was losing a battle with her failing memories and ability to know what was going on around her, to manage her finances and take her medications.

My sister and I visited several assisted living facilities and nursing facilities. We encouraged (begged and pleaded) with Mother to come with us but she would have none of it. She wanted to stay in her house until she died.

Fast forward 18 months, on a July morning she walked outside her house, tripped and fell. As a result of the fall she had fractured her pelvis and was placed in a nursing facility to recuperate. When it came time to make a decision to go home she was insistent that she was going home. I was torn because after her few months in the nursing home she seemed more cognitive of what was going on and seemed to be moving better as well. All this was a result of better diet, attention and care, consistent medications, lack of worries or stress from being in survival mode. Although it was difficult, with her doctors help, we did tell her she would no longer be able to live on her own.

note I live 2000 miles away and although I don’t she her every week, over the past year and a half I have been to see her eight times. The last several times, when I walk in with my sister she looks a me for a moment but pretty quickly realizes who I am. Last week, I traveled down and with my sister went to tell her that her step son had passed away. She had claimed Albert as her own when he was ten years old, the youngest of all of us he past away suddenly and unexpectedly at 59. When we walked in she said to my sister who sees her every other week, “Who is that woman with you?” My sister replies you don’t know who this is? It’s your daughter. Sister quickly reassures me that the reason she did recognize me was due to the fact my hair was up in a bun.  She says that Mother sometimes doesn’t recognize her at first if her hair is in a ponytail.

We held Mother’s hand and told her the sad news about Albert and his passing.  All in all she took it well,  but repeated the same questions over and over about how, where, funeral etc. We took her to dinner and when we left she was a little weepy but accepting. The next day we came back and took her to lunch with her friend. We had a good lunch, then went back to her room and put up valentine decorations and gave her some new sweaters and blouses we had gotten her. She was in good spirits although she still keep repeating the same questions, not fully grasping or remembering the answers. When we left she walked us to the door and we said our goodbyes.

Today, one week later, I called her to see how she was doing. It was my second call this week. The first thing she said to me today was, “Did you hear Albert died?’ I said, “Yes I heard. Remember Paulette and I came to tell you last week?” No, she didn’t remember me coming, she remembers my sister but not me. She asks again about Albert’s funeral, and then switches the subject  tells me she got new shoes but she doesn’t know where she got them or what they look like. Then she asks me, “When are you coming to see me?”

It is a little stab in the heart, she doesn’t know me but she does; she wants me to visit but she doesn’t remember. I dread the day she doesn’t know me when I come or doesn’t ask when I am coming back. Sadly,  I know one day my mother will forget me.

 

Dementia

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To Texas again and a free movie. Why does it seem there is always a movie with a lesson for me? ( See note May 2017 on “Collateral Beauty”) This flight’s movie was with Nick Nolte in “Head Full of Honey”. Besides the obligatory political snide remarks that were completely off track for the theme this movie, it has given me an insight to something I am facing, and a way to see the another side of caring for an elderly parent. A way to move past my childhood hurts and my biases, my history and frustrations.

It is about dementia and the toll it takes on families and the acceptance that needs to happen to overcome the challenges it brings as your love slips deeper into the disease.

Nolte plays an old man whose son brings him to live in his home as he can see he is not caring for himself. The son is in major denial about his condition; he just thinks he’s old and forgetful. The wife sees that something more serious is going on; she cannot cope and is angry. Then there is his 10 year old granddaughter; she sees both of those things but is filled with love and compassion for her grandpa. She has no past hurts or grudges, she is non-judging, she listens to his tales and plays along with his delusions.

As he deteriates she reminds him of his life and what was important to him. She overlooks his outbursts and takes him on an journey of love to the Italian city of love.

I am always listening to hidden messages. I have been in all these places the past few years but I need to concentrate more on loving my mom where she is now. I need to not react to things that are triggers, maybe in the past I saw it as manipulation and maybe it was, but I need to accept that this is where her mind is now. I have taken her on many journeys of love and taken her on many trip to beautiful places… perhaps this last journey will be the hardest for us both.

The Book of Mother: My Story

 Last summer looking for some guidance, advise, help and yes, probably sympathy I joined a group called Caring for Elderly Parents.  I was trying to make decisions regarding my mother’s care.  I found all of the above there and after a few weeks I realized I was only one of many who were facing these challenging decisions. 

I have found there are no “one solution fits all all” answers. Also, rules vary state-to-state but I feel I have moved past the crucial decisions and accepted I did the best I could for my mother. I did it without the help of my biological siblings but with overwhelming love and support from my step-brother and sister who have shown their love and devotion to my mother in tangible ways.   

Some of the things I learned and my thoughts are listed below in the hopes some points may help others  on their  journey. 

  1. Family. Even though you have siblings, you may be the only one willing to make decisions. I was lucky because even though mine did not participate, they were quite happy to relinquish any say in decisions I made.  I did not even waste my breath telling them how useless they were. They know it. They can live with their decisions, I can live with mine. 
  2. Guilt!  It is awful, over-powering but do not let it defeat you.  My mother had fallen and broken her hip but for the 18 months prior to that her doctor had told me because of her dementia, the time was coming that she should not live alone.   I live 2200 miles away and had been making 3-4 trips a year to try and help her stay independent.   When the time came after recovering from the fall, she was walking and discussions were started about whether she could go home. At that point she ramped up the pressure.  “I want to go home! I want to go home! I don’t care if I go home and drop dead. I’m going home”.   It was a tortuous couple of weeks.  I, myself, vacillated day to day about the right decision. Accepting the fact your parent is aging and can no longer care for themselves is hard to believe and navigating that role reversal takes an emotional toll.  Don’t let anyone tell you what “you should” be doing. If only others could see the battle going on within your heart they would keep their opinions to themselves.  That also goes to companies that are trying to sell you something. There is one commercial that says…”because we promised Dad we’d keep mom at home.”  That commercial makes my blood boil. How dare they take advantage of the guilt burden we are already carrying.  Trust yourself, grieve, pray, rest when you can and don’t let anyone rush you. When it is right you will know. 
  3. Debts.  One thing you may find is that your parents were good at hiding problems from you, a problem many experience.  Before my mother fell I had taken over paying her bills because she had lost the ability to track and manage funds as a result checks were bouncing in our joint account. Only after she fell, I found my mother had several credit cards with high balances that she was behind in the payments and she had never told me about. I called and tried to explain the situation.  I told them I could make very minimum payments for her which I did out of her funds.  When it was decided she would not go home, I called and told them she could no longer make these payments as the state would be taking all of her funds for her care. They tried to pressure me to pay her debt. Don’t do it. Any funds you have you may need to buy personal supplies for your parent. My mom is left with only $60 a month to buy toiletries, medical supplies, or snacks. Use your money to care for your parent. The credit card company agreed to take the risk of extending credit, I did not.   If they want to sue an 85 year old for a debt, although large for her it is small potatoes for them, well let them try.  I learned that in TX where my mother lives there are protections for Social Security funds. So sorry Capital One but we are done.  
  4. Trust. Trust but verify. After my mother fell the lady handling her Medicaid application at the nursing facility kept assuring me they had filed an application. After months of checking in with her, I called one day and found she had been dismissed… no application had ever been filed. I finally processed the application myself. It took many calls to the state and oftentimes just calling back and getting another person is worth the trouble.  If you find someone that actually knows what they are talking about,  see if you can get their direct line!  
  5. Document. Trying to keep all the details of this period taxed my sixty-something brain.  I got a spiral notebook and started documenting everything. Calls to the nursing facility, calls to her utilities and other bills, passwords for her accounts on state agencies and even calls to my mother. Often day-to-day it was interesting to see what she remembered one day that was gone the next. It has been a valuable tool and also serves as a journal to remind you how far you have come and reassure you that you will make through to tomorrow, to next week or month.  I call my book, “The Book of Mother. “
  6. Forgive. Finally but not least, forgive yourself, forgive your parent and try to forgive others. Through my own journey, I went through a multitude of emotions and feelings about my mother.  Love, sadness, anger, frustration and sorrow.   The hardest to deal with was anger… I was angry that my mother hid things from me, angry because I felt she was  being manipulative and then I was angry at myself for feeling angry.   It happens.  I have someone I can voice these feelings of anger to without feeling judged and that helps, because I think more than anything it was an anger that I didn’t want to accept the fact that my mother was getting old.  Many of these things, although she may have done them in the past,  she was not doing them purposefully now.  Now I try to direct my anger at the disease that takes away your mind and independence.  Forgive others… that is difficult. I won’t go into depth here but just know, the evil in man’s heart knows no bounds and it shocks me to know what people will do and how they will take advantage of the elderly.  Thankfully there are fewer of these people and more of the loving and giving types. 

I am running low on thoughts for now. It has been 5 months since my mother’s doctor told her she could not go back to her home of 45 years.  I am now in the process of dismantling my mother’s life and possessions even though she is still here, that has it’s own challenges. My mother told me the other day that she didn’t want to go home anymore. ❤️ I think the past few years she was battling to survive physically and mentally, but now is cared for and loved.  She feels safe and can rest for the rest of her retirement years.

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