World IBD Day

Today is World IDB day. Before 2013, I couldn’t tell you what it was, or how it affected people who have it. Now, unfortunately I have several family members and friends who have been diagnosed with IBD and due to involvement with the Crohn’s and Colitis Foundation, I have met many other people who are battling IBD.

Per the CDC, IBD is: “Inflammatory bowel disease (IBD) is a term for two conditions (Crohn’s disease and ulcerative colitis) that are characterized by chronic inflammation of the gastrointestinal (GI) tract. Prolonged inflammation results in damage to the GI tract.” Sounds simple, right? It is not. It is painful, it is life altering and it can be deadly.

In 2013, my youngest son was diagnosed at age 22. We hit the learning curve very quickly as within a month he was rushed to surgery with a condition known as Toxic Mega Colon. His colon had perforated and it was removed. That was only the beginning of his 9 year battle. After five surgeries, two near exsanguinating bleeds, 3 biologics, 20+ hospitalizations and too many tests to list, he is still battling this debilitating disease and it breaks my heart to see him struggle and suffer.

This year the hashtag for World IBD Day is #ibdhasnoageIDB has no age. It attacks the young and the old but most often diagnosed between 15-35. It has no age and attacks men and women alike worldwide.

They have treatments: Steroids that cause weigh gain and fat deposits on various parts of your body, even a condition that’s called “moon face,” when where the fat lies changes and makes your face appear rounder and wider; biologics which suppress your immune system and leave you susceptible to serious infections, cardiac issues, joint pain, and even certain cancers. Today, I know more, than I wish I did but the most important thing I know is that – THERE IS STILL NO CURE.

If you know someone with IBD, offer your support, don’t judge what they eat, how active they are or say “you don’t look sick.” Believe me when I say they would not wish this on anyone.

Chronic Illness: you don’t get it until you get it.

https://www.crohnscolitisfoundation.org/what-is-ibd

More of his story here: https://emyloomwordswovenwithinmyheart.com/2017/05/19/villains-and-superheros/

Image courtesy of: worldibdday.org

Alive and Growing

I would like to start by saying I am not defending anyone who did not obey the airline rules about masking but what happens next and the things the airline rep says plus the actions of the German police is chilling.

On a recent flight from JFK to Frankfurt then to Budapest, it was announced that because Lufthansa is a German airline, passengers were required to wear a mask as it is German law. Some passengers including several of Jewish decent refused to wear a mask. When the flight arrived in Frankfurt “all” people whose appearance showed them to be Jewish or had Jewish sounding names were refused boarding on their connecting flight.

In the first video a passenger is trying to reason with the Lufthansa rep as he was not with the ones not masking and he did not know them. He wanted to know why he was refused boarding.

She says, “everybody has to pay for a couple.” —- “Jewish people were the mess, they made the problems.

What? Does that sound that far from the Nazi rallying cry… Jews are the problem?

The passenger is astonished that in 2022, in a western country he would be refused boarding because of his race or religion. Surely, the airline staff had the ability to take the seat numbers and names of those who would not comply. Reportedly others who were not Jewish, who also refused to mask, were allowed to board.

The passengers who were denied boarding were section off behind a rope and the police were called. In the second video someone in the crowd calls the officer a Nazi. His reaction, his body language and demands to know who said it while holding the automatic rifle is horrifying.

There would be outrage if this happen to any other group of people. Would all whites be banned, all blacks, all Christians, or all Muslims? I would be on the news and cries for demanding justice from all walks of life. Thus far I have only seen this a a few Jewish news agencies and a week after the incident an article in the Jerusalem Post.

We say “Never Again” but anti-antisemitism is alive and growing. The growing hate between many groups is alarming and I pray we can turn our hearts away from hate and discrimination before it is too late.

Mother’s Day

Sunday is Mother’s Day, nearly a year since my mother passed and a final of firsts for me, my first Mother’s Day without my mother and the final event of the past year of marking each first without her.

Last Mother’s Day, I flew to Texas to see my mom and I realized it would be our last together. Since her surgery the prior October, her health had dramatically declined. Over the years I tried to travel to see her on Mother’s Day and her birthday.   They were special occasions for her, ones that if missed, she would feel slighted and perhaps unloved.

Those set apart occasions that the greeting card and florist benefit from are not so important to me.   I appreciate the love and attention I receive year-round, sometimes it is just a simple text to say “Hi” or “I am thinking of you.”  Expressions that are sent without any expectation because of designated day are cherished in my heart.

Understand, my mother got many many expressions of my love throughout the year but those days were especially important to her, perhaps an old traditional way of thinking that this was a day set aside for Mothers, and because of that, she expected recognition and honor and I honored her.

In 2001, my mother came to visit me at Mother’s Day. We attended a Ladies Luncheon to honor mothers. The women in the group each wrote a short portrayal of their mother and shared it. Here is what I wrote May 12, 2001.

My mother was named Helen Patricia but she prefers to be called Patsy.
  One thing I admire about my mother is that she is able to get up in front of people and speak.  Something I didn’t inherit from her.  However,  I really wanted to share something about her today.  She lives in Texas; she writes poetry;  she teaches and speaks to Women’s Groups at other Churches; she has been involved in the leadership of Girl Scouts. 
  I grew up in a home with a believing, prayerful, faithful mother in the South at a time when prejudices and hatred surrounded us.  But I grew up knowing no prejudice.  My mother loved people; all people, she taught and had respect for everyone and she would do all she could to help others.
  For several years my mother was a single mom with three young children and although we did not have a lot, my mother always had something to share with others who had less.  Whether it was a place to stay; a few dollars; a meal or just watching someone’s children so they could work.  She always shared whatever she had with a grateful heart.
  My mother has also always had a love for elderly ladies.  Today she teaches the senior ladies’ Sunday school class at her church and she has for the past twenty years.  So many times people are too busy for the elderly, but my mother loves each one of her ladies as if they were her own mother or grandmother.  She takes the time to be with them, look after them, minister to them.  She would tell you that she has learned so much from these ladies and receives immeasurable blessings from knowing them. 
  Over the years my mother has seen most all of her class go home to be with the Lord.  At one time she had twenty ladies in her class now she has only four.  The oldest is Mae; she is 104.  Mae never had any children.  Every week, my mother goes to her house, washes her dishes, answers her mail, brings her lunch and sits and eats lunch with her.
  When I go to visit my mother, I go around and visit with her ladies too.  They tell me how sweet my mother is and I’d have to agree.

Now, Mother’s Day is a day with no plane trips, no cards, no flowers, no brunch but years’ worth of Mother’s Day memories. I pray where ever her spirit is today she knows that I tried to show her that I loved her. After this “final first” celebration without my mother, I wonder if I will begin to let go and not remind myself on each special day that she is gone or how many months have passed since she left? Will special occasions just be that or will they always be one without my mother?

Happy Mother’s Day, Mother.  I did all I could to show my love, I hope you felt it.

Mother of Three Sons

For over forty-one years, I had a son with me.
First one, then two, then one, two briefly and back to one.
A total of three.

They, all three, have never ceased to;
Amaze me, puzzle me, surprise me…
Love me.
They’ve scared me, challenged me,
Pushed me to a level I didn’t think I had the strength to go.

Through the eyes of my sons;
I have learned about every snail in the garden;
that under any rock one might find a salamander.
I’ve seen Lizards and gecko’s found from our backyard and around the world
Beaches are places where we find, crabs, starfish, and little fishes in the pools.
I’ve been a nurse to countless abandoned and injured birds.

I’ve walked the forest to find, the smallest fragment of a robin shell under a tree,
Long-lost feathers from every type of mysterious bird, and
Every acorn, seed pod and piece of drift wood is a treasure.
They’d find the tiniest flowers that I may have over-looked
had the careful, watchful eye of a boy, not been beside me.

My sons have had every pet imaginable, from
Stick bugs, to hermit crabs to hedgehogs to Snakes,
Goldfish, tropical fish, chickens, ducks and doves.
Hamsters that we mourned when we thought gone, but only hibernating
and once even a grasshopper that came back from CA on the plane.
Add a handful cats and a couple of dogs that lived long past the boyhood years.

I’ve cheered them on at baseball games,
Served my volunteer time at the concession stand,
Watched football games in the cold;
Soccer in the rain and basketball in the hot gym.
All for enjoyment,
Only to realize to some parents this is a very serious competitive thing.

There have been times of mischief and trouble,
Mistakes forgotten and forgiven.
I’ve seen their hearts broken by girls from the age of 5 to 33;
It never gets any easier boy to man.
Losses from wars, life changing accidents and fate…
Some of those memories still weigh heavy on my heart,

I survived it all, and came out a stronger, maybe a little wiser too.
Some days I wish I could go back;
And be more patient, more understanding, more loving,
Take more time to listen and not be in such a hurry.
That we could play more, talk more.

Some days, I long to just sit and cuddle,
With a little boy who thinks I’m his whole world.
Though I can’t have that time back,
I do know that they all love me.
Sometimes they have to put up with me.
Like when I want to be a matchmaker, or I fret or worry.


I am the mother of three sons; I am very blessed.

© 2011 Trish B

Photo 1999. Written In 2011 – they just keep getting older but not me.